SPAH has developed a number of information leaflets for patients, families and professionals. Other leaflets are in development, please check back soon for more information.
The network produced a booklet; “Sickle Cell – a guide for teachers” to try to help schools and teachers better understand the condition. A Transcranial Doppler Scan – child friendly leaflet has also been developed. If you would like a copy of either documents, please ask your local doctor or nurse for a copy as they are not available electronically.
Information for Adult Patients
Information for Parents / Carers & Young Person
Acute Chest Syndrome in Sickle Cell disease (parent/carer)
Hydroxycarbamide in Sickle Cell disease (parent/carer)
Priapism in Sickle Cell disease (parent/carer)
Sickle Cell disease – a travel guide (parent/carer)
A child with Sickle Cell disease on Vaccinations (parent/carer)
Caring for your unwell child with Sickle Cell disease (parent/carer)
Information on Thalassaemia Major (parent/carer)
Information on Trans Cranial Doppler (TCD) ultrasound in NHS GG&C (parent/carer)
Information on Trans Cranial Doppler (TCD) ultrasound outwith NHS GG&C (parent/carer)
Priapism in Sickle Cell disease (young person)
Hydroxycarbamide in Sickle Cell disease (young person)
Pain Management & Information for GPs
Currently used in Greater Glasgow & Clyde, the Painful Sickle Cell Crisis Flowchart is a useful teaching aid for new parents and also helps teenagers become more independent in managing their pain.
GP Sickle Cell Adult Management
Sickle Cell Disease Information for GPs: Patient management of Young Person in Primary Care
Sickle Cell Disease Information for GPs: Paediatric patient management in Primary Care