Welcome to the Scottish Paediatric & Adult Haemoglobinopathies Network (SPAH) website.
SPAH is within the National Network Managed Service (NNMS) funded by National Services Division (NSD) and hosted by National Health Service (NHS) National Services Scotland.
The network was formally established on 1st April, 2011.
The definition of a Managed Clinical Network is:
“linked groups of Health Professionals and organisations from primary, secondary and tertiary care, working in a co-ordinated manner, unconstrained by existing professional and Health Board boundaries, to ensure equitable provision of high quality clinically effective services throughout Scotland”
The network’s aims are:
- To provide links to the Newborn Screening Programme to ensure sensitive and timely confirmation of diagnosis, and early access to clinical care package for all infants suspected of having a major haemoglobinopathy.
- To ensure prompt diagnosis and access to treatment for cases detected beyond the new born period.
- To ensure access to appropriate and prompt acute care when required for all children and adults, particularly effective acute pain management services.
- To ensure access to multidisciplinary health care professional team who are knowledgeable about these conditions.
- To facilitate provision of specialist investigations as defined in national care guidelines.
- To ensure access to a support network/charitable network who will be able to offer guidance on day to day living.
- To ensure access to services in a location that is suitable for their needs as close to home as possible.
If you have anything you would like to add to this website, please contact us on nss.spah@nhs.net