Scottish Paediatric & Adult Haemoglobinopathies Network caring for patients with Sickle Cell and Thalassaemia.
The Scottish Paediatric and Adult Haemoglobinopathy Network (SPAH) is a National Managed Clinical Network set up in 2011. The network aims to support delivery and improve access to high quality, patient and family centred care for people with Sickle Cell and Thalassemia regardless of age, ethnicity or geographical location.
If you would like to contact the SPAH team please email nss.spah@nhs.scot and we will connect with you.
Further information about the activities of the network can be found within the SPAH annual reports.
The Scottish National Blood Transfusion Service (SNBTS) is pleased to announce its collaboration with NHS Blood and Transplant (NHSBT) and NHS England (NHSE) to offer patients with rare inherited red cell disorders in Scotland access to state of the art blood group testing, as part of the Blood Group genotyping programme. This is the first step towards providing better matched blood transfusions for those who need it most. This programme will be open to patients in Scotland from 10 December 2024 to 30 September 2025. Information about the blood genotyping programme in Scotland.
SPAH acknowledges the outcome of the Infected Blood Inquiry Report. Further information can be found by visiting the SNBTS website.
