Sickle Cell Society has produced this video on Priapism which is an excellent resource to signpost young people and families to.
In August 2020, Dr Susan Baird, Consultant Paediatric Haematologist, delivered a presentation entitled “Haemoglobinopathies in Neonates” at the Early Management of Rare Conditions event hosted by the Office for Rare Conditions. The video was recorded by Glasgow Children’s Charity and, with their agreement, has been shared with SPAH for publication on this website.
Public Health England has designed e-learning modules to support the training of healthcare professionals involved in the delivery of the Sickle Cell and Thalassaemia Screening Programme. Modules can be accessed by visiting the NHS England eLearning for healthcare website.
The National Institute for Health and Care Excellence (NICE) has produced sickle cell disease tools and resources for managing painful episodes in hospital. Find out more on the NICE website.
The British Society for Haematology has produced guidelines on:
Guideline for the Management of Conception and Pregnancy in Thalassaemia Syndromes
Guidelines for the Management of sickle cell disease in pregnancy
Please find below a number of useful links to websites associated with haemoglobinopathies:
British Society for Haematology