All available information leaflets are listed below. Information leaflets are split between ‘General Information’, ‘DMD’, ‘Myasthenia Gravis’ and ‘Myotonic Dystrophy’.
General Information Leaflets
| General Information Leaflets | Review date | |
|---|---|---|
| About my spinal fusion | September 2026 | |
| An active lifestyle: What is suitable activity for people living with a muscle disorder? | March 2027 | |
| Benefits of stretching | October 2026 | |
| Chest Physiotherapy Support | June 2028 | |
| Continence Care – Bladder Issues | June 2027 | |
| Continence Care – Bowel Issues | October 2026 | |
| Importance of Sleep | July 2027 | |
| Jaw Tightness (Trismus) | October 2026 | |
| Fatigue Management | September 2026 | |
| Managing Falls | April 2025 | |
| Metabolic Myopathy | July 2026 | |
| Managing Oedema and circulatory problems in neuromuscular disorders | July 2027 | |
| Pain Management | June 2028 | |
| Patient Hospital Admission information | December 2027 | |
| Postural Management | July 2027 | |
| Psychological Services Information | June 2025 | Please provide feedback on this leaflet by clicking here |
| Respiratory Care in Neuromuscular conditions | January 2027 | |
| Role of the Neuromuscular Care Advisor | December 2028 | |
| Wellness journey starts with relaxation | February 2027 |
The Physical Disability Rehabilitation Unit (PDRU) based in the Queen Elizabeth University Hospital, Glasgow campus have some useful resources for general rehabilitation in adults. There is a seated exercise class, but should you be unsure as to whether the exercises are helpful for you, please consult with your local Physio or Doctor before starting.
https://www.nhsggc.org.uk/your-health/health-services/pdru/
Duchenne Muscular Dystrophy (DMD)
Please click on relevant text below to view individual information leaflets.
| Duchenne Muscular Dystrophy (DMD) Information Leaflets | Review date | |
|---|---|---|
| Ankle Management | March 2025 | |
| Bladder function and Continence Care | July 2027 | |
| Managing Falls in young boys | August 2024 | |
| Vertebral fractures in children | June 2028 | |
| Postural Management and Stretches – Adults |
Duchenne UK information
Here you will find specific information materials on Duchenne Muscular Dystrophy.
The following link will take you to an externally produced YouTube video. Content is provided for information only and is not endorsed by our organisation.
Myasthenia Gravis
Myasthenia Gravis is a chronic autoimmune neuromuscular disease characterised by varying degrees of weakness of the skeletal (voluntary) muscles of the body.
Please click on the buttons below to access some information leaflets which may be helpful to you and your family.
| Myasthenia Gravis Information Leaflets | Review date | |
|---|---|---|
| Azathioprine | April 2028 | |
| Corticosteroids | April 2028 | |
| Cyclosporin | April 2028 | |
| Fatigue | April 2028 | |
| Intravenous Immunoglobulin | April 2028 | |
| Methotrexate | April 2028 | |
| Myasthenia Gravis | December 2027 | |
| Mycophenolate Mofetil | April 2028 | |
| Plasma Exchange | April 2028 | |
| Pyridostigmine Bromide | April 2028 | |
| Rituximab | April 2028 | |
| Thymectomy | April 2029 |
Further information can be found by clicking on the buttons below.
Myotonic Dystrophy
| Myotonic Dystrophy Information Leaflets & Posters | Date of review |
|---|---|
| Trial of Modafinil | June 2026 |
| Starting Modafinil | June 2026 |
| Poster: Masseter Muscle Volume Correlates with Disease Duration in Adults with Myotonic Dystrophy Type 1 (DM1) | |
| Poster: Outcome measures for CNS symptoms in adult-onset myotonic dystrophy: insights from a case-control study |
Research
The Scottish Muscle Network has close links with the Myotonic Dystrophy research group led by Professor Darren Monckton
Additional information about research is available through the support organisations detailed on the Links page.