Welcome to the website of the Scottish Muscle Network (SMN), a national managed clinical network for children and adults with neuromuscular disorders. The SMN will be using this website to communicate with its clinical and non-clinical members.
The Scottish Muscle Network (SMN) is a national managed clinical network (NMCN) originally established in 1998 with charitable funding from the Muscular Dystrophy Campaign. SMN is now funded by NHS National Services Division (NSD). SMN was established with the following aims:
- To raise awareness of neuromuscular disorders
- To promote the delivery of an equitable, high quality service to all patients with a neuromuscular disorder across Scotland
SMN brings together everyone involved in neuromuscular disorders. For example this includes:
- Patients and families
- Healthcare professionals
- Social Care
- Research
- Charities
- Education
If you as a patient or patient and/or parent/carer would like to be involved, please contact us at nss.smn@nhs.scot We currently have a number of Working Groups including:
- Steering group
- Adult group
- Drugs and Therapeutics Intervention group (DATIG)
- Education/Audit group
- Myotonic Dystrophy Group (DM1)
- Paediatric group
The Scottish Muscle Network collaborates with a number of agencies to drive improvement in services for people living with neuromuscular conditions. For example, this may include:
- Educational events
- Development of standards
- Patients and family events
- Auditing standards of care
- Infrastructure to support research
- Information provision