All available Information Leaflets are listed below. Information leaflets are split between ‘General Information’, ‘DMD’, ‘Myasthenia Gravis’ and ‘Myotonic Dystrophy’.
General Information Leaflets
The Physical Disability Rehabilitation Unit (PDRU) based in the Queen Elizabeth University Hospital, Glasgow campus have some useful resources for general rehabilitation in adults. There is a seated exercise class, but should you be unsure as to whether the exercises are helpful for you, please consult with your local Physio or Doctor before starting.
https://www.nhsggc.org.uk/your-health/health-services/pdru/
Duchenne Muscular Dystrophy (DMD)
Please click on relevant text below to view individual information leaflets.
| Duchenne Muscular Dystrophy (DMD) Information Leaflets | Review date | |
|---|---|---|
| Ankle Management | March 2025 | |
| Bladder function and Continence Care | July 2027 | |
| Managing Falls in young boys | August 2024 | |
| Vertebral fractures in children | March 2025 | |
| Postural Management and Stretches – Adults |
Duchenne UK information
Here you will find specific information materials on Duchenne Muscular Dystrophy.
Myasthenia Gravis
Myasthenia Gravis is a chronic autoimmune neuromuscular disease characterised by varying degrees of weakness of the skeletal (voluntary) muscles of the body.
Please click on the buttons below to access some information leaflets which may be helpful to you and your family.
| Myasthenia Gravis Information Leaflets | Review date | |
|---|---|---|
| Azathioprine | April 2028 | |
| Corticosteroids | April 2028 | |
| Cyclosporin | April 2028 | |
| Fatigue | April 2028 | |
| Intravenous Immunoglobulin | April 2028 | |
| Methotrexate | April 2028 | |
| Myasthenia Gravis | December 2027 | |
| Mycophenolate Mofetil | April 2028 | |
| Plasma Exchange | April 2028 | |
| Pyridostigmine Bromide | April 2028 | |
| Rituximab | April 2028 | |
| Thymectomy | April 2029 |
Further information can be found by clicking on the buttons below.
Myotonic Dystrophy
| Myotonic Dystrophy Information Leaflets & Posters | Date of review |
|---|---|
| Trial of Modafinil | June 2026 |
| Starting Modafinil | June 2026 |
| Poster: Masseter Muscle Volume Correlates with Disease Duration in Adults with Myotonic Dystrophy Type 1 (DM1) | |
| Poster: Outcome measures for CNS symptoms in adult-onset myotonic dystrophy: insights from a case-control study |
Myotonic Dystrophy Alert Key rings
The Scottish Muscle Network has produced alert key rings as seen below. If you are a professional running clinics and would like a supply of these key rings please contact nss.smn@nhs.scot If you or your relative has Myotonic Dystrophy and would like a key ring, please ask your doctor.
Research
The Scottish Muscle Network has close links with the Myotonic Dystrophy research group led by Professor Darren Monckton
Additional information about research is available through the support organisations detailed on the Links page.