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Information resources and links

Information resources

These resources are aimed to support people with a neuromuscular condition

Hap-pee Resources flyer. Text reads: 'In collaboration with the national rehabilitation center for neuromuscular diseases (RCFM), the 'HAP-PEE' resources offer continence care guidance for women with NMDs on 'having a pee' outside of the home environment and are suitable for use amongst both physiotherapists and patients. (QR code to scan is included in the image)

Links

Please click on the options below to access further information.

  • Action Duchenne
  • Pathfinders Neuromuscular Alliance
  • For DMD
  • Myasthenia Gravis Association
  • DMD Care UK
  • Myotonic Dystrophy Support Group
  • Contact a Family
  • Enquire – The Scottish advice service for additional support for learning
  • Muscular Dystrophy UK
  • Spinal Muscular Atrophy UK
  • The Prince and Princess of Wales Hospice

If you have other suggestions of useful support organisations please let us know and we will add them to our list above.

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