News and Events
Vasculitis
Read about Vasculitis and the VOICES Study on how best to deliver effective services that improve outcomes and experiences of […]
Shared decision making
We have recently created a video and booklet with tips to encourage you to ask questions and make the most […]
SSVN Newsletter September 2020
SSVN Newletter September 2020
Invitation to participate in research to inform services for rare diseases
CONCORD (Coordinated Care of Rare Diseases) is a research study which looks at how care of people with rare diseases […]
Network Launch
The network was formally launched on Thursday 12th December at Stirling Court Hotel. Please click on the links within the […]