This page contains guidance documents. For information leaflets please see the Patient and Families Section.
Guideline
Duchenne Muscular Dystrophy Care UK (DMD Care UK)
UK national guidance for the following areas have been developed and launched by DMD Care UK.
- Bone endo (2020 and revised in 2023)
- Cardiac (2022)
- Respiratory (2024)
These are included in the DMD Care UK website (cardiac and respiratory guidance also published in peer review journals).
Clinicians in the North Star network are updated by the DMD Care UK Project Manager Cathy Turner at the consultation phase and also when guidance is launched or updated. Any member of SMN who wishes to be added to the DMD Care UK mailing list can contact Cathy Turner directly – catherine.turner@newcastle.ac.uk Being on the mailing list means you will receive emails with updates on educational events, new guidelines etc.