Events

Patient Engagement Meeting

The Patient Engagement subgroup is hosting an online open and informal meeting on Thursday 25 April 18:00 – 19:00 for patients with a neuromuscular condition and families/carers who know of someone with a condition. The aim of the meeting is to hear your views on what is important to you regarding your care, or someone you care for. If you are interested in attending, please scan the QR code to complete the registration form. We look forward to welcoming you all.


  • * DATIG – Wednesday 24 April 2024 14:00-16:00 (online)
  • * Annual Conference – Friday 6 September 10:00 – 16:30 (online)