NICCS Annual Symposium: this event takes place on Friday 8th September 2023, 09:30 registration and 10:00 start at COSLA (Caledonian I, ground floor), 19 Haymarket Yards, Edinburgh, EH12 5BH. The programme is now finalised and can be viewed here: NICCS Symposium PROGRAMME.
The event is free for NHS staff however registration is required – please follow this link to register your interest: NICCS Symposium REGISTRATION
_______________________________
NICCS Virtual Annual Symposium: Thursday 9 September 2021, 09:00 – 12:25, MS Teams
The Network for Inherited Cardiac Conditions Symposium invited colleagues/specialists to discuss investigation of sudden cardiac death, cardiomyopathy in children, ICCs and excercise and more. Please join us in free to attend session (registration is required); this is followed by lunch time update focused on referrals from primary care, who to refer and what to expect?
PRESENTATIONS:
RECORDING 1:
* (please go to 3:28 of the recording) Investigation of Sudden Cardiac Death in 2021 – Dr Kerryanne Shearer
* (please go to 39:20 of the recording) Cardiomyopathy and children, looking after the next generation – Dr Juan Kaski
RECORDING 2:
* (please go to 0:05 of the recording) The value of peer support – Cathy Stark, Joel Rose – Cardiomyopathy UK;
* (plese go to 19:50 of the recording) Inherited cardiac conditions & excercise – Dr Duncan Hogg (please follow the link to the list of reference documents mentioned during Dr Hogg’s presentation: documents)
* (please go to 1:06 of the recording) Long QT Syndrome – Dr Rachel Myles
_______________________
NICCS Online Patient Event: Wednesday 23 June 2021, 18:15 – 20:00, Teams
The Network for Inherited Cardiac Conditions Scotland (NICCS) supports improvements in the diagnosis, treatment and outcomes of people with inherited cardiac conditions.
The event went really well, with around 25 people attending. We have recorded this event – please follow the table below indicating the times of presentations you would be interested to view:
NICCS Online Patient Event – the RECORDING
Sarah’s story – Sarah Latto | Please go to 08:42 of the recording |
Role of the ICC nurse – Susanne Christie | Please go to 0:34 of the recording |
Role of cardiologist – Dr Rachel Myles | Please go to 0:43 of the recording |
Role of genetic counsellor – Kirsten Patterson | Please go to 51:43 of the recording |
ICC Team – Genetics – Dr John Dean | Please go to 1:01 of the recording |
Paediatric Cardiology – Dr Maria Illina | Please go to 1:12 of the recording |
Cardiac rehabilitation – Fiona Brownlie | Please go to 1:21 of the recording |