SAVE THE DATE
NICCS Annual Symposium: this event takes place on Friday 8th September 2023, 09:30 registration and 10:00 start at COSLA (Caledonian I, ground floor), 19 Haymarket Yards, Edinburgh, EH12 5BH. The programme is now finalised and can be viewed here: NICCS Symposium Programme.
The event is free for NHS staff however registration is required – please follow this link to register your interest: NICCS Symposium REGISTRATION
Saturday 25 March 2023, NICCS Patient Information Event – face to face event, Edinburgh Training & Conference Venue, attendance is free for all patients/families, or anyone affected by inherited cardiac condition. Registration is required: NICCS Patient Event – REGISTRATION, programme is now available to access here: NICCS Patient Event PROGRAMME.
Friday 9 September 2022, NICCS Annual Symposium – face to face event, Perth Station Hotel. To book your space – please register with the following link: NICCS Symposium REGISTRATION. The programme is not finalised yet, however draft version is now available for your perusal: NICCS Symposium draft Programme
April 2022 Update:
NICCS is aware there are current supply issues in medication in some parts of Scotland. This may affect patient with:
- Hypertrophic cardiomyopathy (if prescribed disopyramide)
- Long QT syndrome (if prescribed nadolol)
Most people can have alternative medicine and dose adjustments.
Patients and Professionals – please contact the network if there are difficulties in obtaining clinical advice in your local area.
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NICCS Patient Experience Questionnaire – now LIVE
NICCS aims to support improvements in the diagnosis, treatment and outcomes for people with inherited cardiac conditions (ICC). The Network have prepared a Patient Experience Questionnaire to understand what is important to people affected by ICCs, to find out what works well and how we can tailor services to better meet the needs of people affected by ICCs.
Read more here
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NICCS Long QT Pathway & Guidance around RVF Arrest were recently updated and endorsed by NICCS Steering Group – go to NICCS Guidance page to find out more.
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ICD10 / READ Codes – the appropriate ICD10 and READ codes to be included in NICCS clinical letters to other professionals to ensure correct diagnosis is recorded for the patients. Read more here
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SAVE THE DATE: Thursday 9/09/2021
NICCS Annual Symposium is being organised on Thursday 9th September 2021 as a free event for all the staff involved in Inherited Cardiac Conditions in Scotland. It is a virtual event via MS Teams and the registration would be required to attend.
Draft programme and registration link would be shared in due course. For any enquiries please contact NICCS Network Office at nss.niccs@nhs.scot