Our Patient Engagement Group (PEG) includes representation from people who were born with a cleft, parent/carers of a child who was born with a cleft and voluntary sector organisations with an interest in cleft care. This group has developed the Network Patient Experience and Engagement Strategy which describe how the experiences of people born with a cleft lip and/or palate and their carers, and understanding what matters to them, should inform the activities of the network. Some of the activities the group are doing include:
- Gathering and representing the views of the cleft community.
- Contributing to the development of resources eg questionnaires, leaflets, newsletter, website.
- Guiding Cleft Care Scotland on proposed patient activities such as an annual patient/carer event.
If you would be interested in joining the Patient Engagement Group (PEG) or want to find out more about the work we do, please email nss.cleftcarescotland@nhs.scot, and/or you can complete the Group Membership Form.
We are keen to have a diverse group of voices and would welcome people to apply regardless of gender, age, disability, ethnicity, sexuality. We would like a mix of cleft lip and/or palate experience, across a geographical spread, therefore, encourage people from all over Scotland including rural mainland and islands to note their interest.
You do not need to have any formal training or background, just a willingness to read through any materials sent to you prior to meetings and engage in open discussions. For further information about Cleft Care Scotland please visit the website https://www.cleftcare.scot.nhs.uk/.