ATTOMIC – Access to transplant outcome measures in children – looking at what different factors might cause delays in patients and families being able to receive a kidney transplant.
SPEAK – A study looking at psychological and social effects of having significant kidney disease as a teenager or young adult. This study helped identify factors that can protect mental health, and what may influence how well young people do in later life.
PREDNOS 1 – A study that showed that 8 weeks of steroids is just as good as 12 weeks of steroids when first treating nephrotic syndrome.
PREDNOS 2 – A study looking at whether steroids stop relapses of nephrotic syndrome if given when a child has got a cold, before they relapse – they don’t!
TWIST – A study that showed that short courses of steroid at transplant were just as good as a long course of steroids.
ALXN1210-aHUS-312 – A study looking at a new drug (Ravulizumab) for the treatment of atypical HUS. This study proved that the new drug was safe and just as good as the existing drug for this very rare condition.
For patients on any kind of DIALYSIS – the ATTOMIC-updated study looking at the emotional and psychological effects of waiting and getting a transplant.
For patients with LUPUS NEPHRITIS – a study testing a new type of medication to see if it is better than our current medicines at controlling the kidney involvement in lupus disease. (The POSTERITY study).
For ALL kidney patients – an online survey study looking at the effect of Covid19 on mental health at different stages of the pandemic. (The SHARE study).
For patients on DIALYSIS or TRANSPLANTED – a study testing blood samples given in clinic, to look for Covid-19 antibodies. (The ISPY study).
For patients with a TRANSPLANT – a study testing a new vaccine against shingles, already given to adult patients. This study is looking to see if the vaccine works in children, and whether the side-effects are the same in adults and children.
For patients with a TRANSPLANT – BEAMKids is a study looking to see if having access to an online exercise portal aimed at children and young people is effective in improving physical activity after transplant.
For patients with NEPHROTIC SYNDROME – studies looking at new drugs that can help reduce the protein leak when steroids aren’t working. There are two studies with two different drugs, to see if these medicines work as well as they do in adult patients. (The EPPIK study and the FIONA study).
For patients with CHRONIC KIDNEY DISEASE and ANEMIA – a study to see if a new tablet (used in adults) is effective in children for treating anemia, instead of an injection.
For patients with CHRONIC KIDNEY DISEASE –a study to see if a new type of medication (called SGLT2 inihibitors) now being used in lots of adults to slow down progression of their kidney disease, also works in children and young people – the EMPAKIDney trial.
Date of last review: 09/10/2026
Date of next review: 09/01/2027