ATTOMIC – Access to transplant outcome measures in children – looking at what different factors might cause delays in patients and families being able to receive a kidney transplant
SPEAK – A study looking at psychological and social effects of having significant kidney disease as a teenager or young adult. This study helped identify factors that can protect mental health, and what may influence how well young people do in later life.
PREDNOS 1 – A study that showed that 8 weeks of steroids is just as good as 12 weeks of steroids when first treating nephrotic syndrome
PREDNOS 2 – A study looking at whether steroids stop relapses of nephrotic syndrome if given when a child has a cold, before they relapse. Results have shown that, in the absence of proteinuria, during an intercurrent illness a short course of steroids does not stop relapse so is not beneficial.
TWIST – A study that showed that short courses of steroid at transplant were just as good as a long course of steroids.
ALXN1210-aHUS-312 – A study looking at a new drug (Ravulizumab) for the treatment of atypical HUS. This study proved that the new drug was safe and just as good as the existing drug for this very rare condition.
SHARE an online survey study looking at the effect of Covid19 on mental health at different stages of the Covid-19 pandemic.
I-SPY – a study looking at Covid antibodies before and after infection and vaccination in transplant patients
If you would like more information about any of these studies, please contact: Ben.Reynolds@nhs.scot