Below are links to UK organisations that you may want to contact to be added to their circulation list for information, events and latest news.
Addison’s Self-Help Group supports people affected by Addison’s and adrenal insufficiency.
Androgen Insensitivity Syndrome Support Group provides information and support to young people, adults and families affected by XY female conditions such as complete and partial Androgen Insensitivity Syndrome.
Association for Multiple Endocrine Neoplasia Disorders (AMEND) is a patient group set up in 2002 to support and inform anyone affected by or interested in multiple endocrine neoplasia disorders and their associated endocrine tumour
Child Growth Foundation focusses on the support, understanding and management of rare growth conditions to improve the lives of children, adults and families affected.
Congenital Adrenal Hyperplasia Support Group supports people with CAH, their families and friends.
Explain me helps improve communication between young people, their parents/carers and healthcare professionals in endocrine clinics.
Make-A-Wish can create life-changing wishes for children with critical illnesses.
The Pituitary Foundation supports everyone in the pituitary community, every step of the way.
Turner Syndrome Support Society offers support for girls and women with Turners Syndrome.
West Dunbartonshire Wellbeing where children, young people and their families, and those who work with them will find information to support and improve wellbeing and emotional health. The website not only provides information locally but offers more general information and resources too.
What? Why? Children in Hospital has lots of information and videos online to help children and young people prepare for their hospital visits including blood tests, cannulas and MRIs.