A list of professional SPEG patient and family resources can be found below.
Transition information for professionals can be found here.
Family / Patient / Carer (information sources)
Transition: A Guide for Young People and Families
BSPED Adrenal Insufficiency Card: Paediatric steroid care plan for sick days and emergencies
Patient information: when to give additional steroids
Useful links
General
Adolescent Health Programme: https://www.e-lfh.org.uk/programmes/adolescent-health/
HEEADSSS (communicating with young people): https://www.uptodate.com/contents/image/print?imageKey=PEDS%2F68041
British Thyroid Foundation – Thyroid disorders – a young persons guide: Thyroid disorders – a young person’s guide (btf-thyroid.org)
Organising young person-friendly services
Developmentally Appropriate Healthcare toolkit: https://www.northumbria.nhs.uk/about-us/quality-and-safety/research-and-clinical-trials/developmentally-appropriate-healthcare-toolkit#0b742aa3
NICE Guidance on Transition from children’s to adults’ services: https://www.nice.org.uk/guidance/ng43
You’re Welcome (DoH): https://www.gov.uk/government/publications/quality-criteria-for-young-people-friendly-health-services
Ready Steady Go: https://www.readysteadygo.net/home.html