The purpose of the Scottish Inherited Bleeding Disorder Network (SIBDN) is to facilitate clinical and other improvements for individuals with inherited bleeding disorders. A key aim of the Network is to enable timely and effective care for individuals with inherited bleeding disorders across Scotland.
SIBDN is a life span network and encompasses care for individuals born with an inherited bleeding disorder at all stages in the patient pathway from childhood through to adult hood. These conditions are rare in the general population and most are genetically inherited. Bleeding disorders are treated by replacing the missing clotting factor.
Specifically, all adults and children with the following diagnosis will be covered by the network:
- Haemophilia A (Factor VIII deficiency)
- Haemophilia B (Factor IX deficiency)
- Von Willebrand Disease (vWD)
- Acquired Haemophilia and other related bleeding disorders
- Other rare forms of Inherited Bleeding Disorders
The network is overseen by the Steering Group which discusses and agrees the overall strategy for the network.