Professional Resources
This area is designed to provide useful information relating to individuals born with differences of sex development and atypical genitalia.
SDSD Professional resources
Other useful information
Please refer to the disclaimer at the bottom of the page for more information.
Clinical practice guidelines for the care of girls and women with Turner syndrome
NICE guidance on Primary Amenorrhoea
Caring for Individuals with a Difference of Sex Development (DSD): a Consensus Statement
These guidance documents are not intended to be construed or to serve as a standard of care. Standards of care are determined on the basis of all clinical data available for an individual case and are subject to change as scientific knowledge and technology advance and patterns of care evolve. Adherence to guidance recommendations will not ensure a successful outcome in every case, nor should they be construed as including all proper methods of care or excluding other acceptable methods of care aimed at the same results. The ultimate judgement must be made by the appropriate healthcare professional(s) responsible for clinical decisions regarding a particular clinical procedure or treatment plan. This judgement should only be arrived at following discussion of the options with the patient, covering the diagnostic and treatment choices available. It is advised, however, that significant departures from the national guidance or any local guidance derived from it should be fully documented in the patient’s case notes at the time the relevant decision is taken.