Experts By Experience Group
The Paediatric End of Life Care Network are looking for families (including parents, siblings, carers and guardians) whose family member is receiving, or has received, paediatric end of life care services in Scotland.
The ‘Experts by Experience’ review group will allow parents, carers and families to be represented when designing and improving paediatric end of life care services in Scotland.
We work with NHS Boards and other organisations to help them –
- Improve services
- Improve training for staff
- Review pathways and processes into care
To help us to ensure that parents/ carers and families are at the forefront of decisions that are made we would welcome your contribution to the network activity.
You can choose the level of involvement that suits you; from keeping in touch via email​, to attending virtual meetings of the group when required, or even volunteering to be contacted to speak at events.
If you would like to be part of the PELiCaN Experts by Experience Group please complete the following survey to register your interest.