We work closely with people and families with inherited cardiac conditions to find out what matters most to them and to see what more we can do. One of the ways we do this is meeting with our patient group which includes people with inherited cardiac conditions, family members and heart charities. This group helps us to plan information events, develop patient information and patient surveys.
You can get involved in our work in different ways, such as:
- Coming along to network meetings
- Commenting on the information we develop
- Telling us about the care that you get
- Suggesting how we can better support you
- Joining our mailing list to find out what we are doing
You can email us at nss.niccs@nhs.scot, scan the QR code below or visit: https://forms.office.com/r/7cyyAC2D2C to tell us know how you would like to get involved.
