The following information resources were designed and contributed to by professionals and parents caring for Children with Exceptional healthcare Needs:
The Emotional Impact of Tube Feeding – How does it feel?
“The Emotional Impact of Tube Feeding – How does it feel?” is an information leaflet for parents/carers whose children need help with feeding. It identifies the impact of tube feeding is different for everyone and supports discussions around the feelings parents may experience.
What to expect when your child has complex needs
The “What to expect when your child has complex needs” booklet is for parents/carers to give some idea of what might be involved for them as a family when their child has been diagnosed with complex healthcare needs and discuss the feelings they might have and how they or other family members may react.
Consent & Capacity Family Factsheet
CEN has developed an updated Consent & Capacity Family Factsheet information leaflet for families and professionals.
Within the leaflet there is a Q&A section which answers some common questions and queries however, if you require any further information please contact the network at nss.cen@nhs.scot.
For paper copies, please contact the network on nss.CEN@nhs.scot
The Big Brave Community
Our friends at Children’s Health Scotland have collaborated with doctors, nurses, musicians, charities, linguists, school students and artists who are interested in improving the way that information is given to people going into hospital.
Starting with children who go to hospital for an operation or procedure requiring a general anaesthetic (medically induced sleep), their aim is to make information about what will happen during your hospital journey more accessible, easy to understand and fun and have produced pictures and video’s which can be used to explain the process.
Details of this work can be located here.