The following information resources were co-produced by families caring for children with exceptional need and healthcare professionals.
The emotional impact of Tube Feeding
“The emotional impact of Tube Feeding” is for parents/carers whose children need help with feeding. It identifies the impact of tube feeding is different for everyone and supports discussions around the feelings parents may experience.
What to expect when your child has exceptional healthcare needs
The “What to expect when your child has exceptional healthcare needs” booklet is for parents/carers to give some idea of what might be involved for them as a family when their child has been diagnosed with exceptional healthcare needs and discuss the feelings they might have and how they or other family members may react.
Consent & Capacity Family Factsheet
CEN has developed an updated Consent & Capacity Family Factsheet information leaflet for families and professionals.
Within the leaflet there is a Q&A section which answers some common questions and queries however, if you require any further information please contact the network at nss.cen@nhs.scot.
For paper copies, please contact the network on nss.CEN@nhs.scot
CEN A bit of extra help
Children with Exceptional Needs Network – a bit of extra help. Written by Di Bumpus, member of CEN experts by experience group.