- CAH
- Turner Syndrome
- Klinefelter Syndrome
- MRKH Support Group Scotland
- Hypospadias
- DSD Families
- DSD Families – When your baby is born with genitals that look different… The first days
- DSD Teens
- Office for Rare Conditions
- i-DSD Registry
- Royal Hospital for Children, Glasgow
You can find details on all European and International groups via the AISSG UK site.
- The Netherlands: AISNederland
- Spain: GRAPSIA
- Asexve – Spanish group supporting families living with bladder extrophy, cloacal bladder extrophy and epispadias