Mesothelioma UK Research Centre – Research Prioritisation Exercise Survey

Posted by: NNs - Posted on:

Mesothelioma Patient and Carer Experience Research Prioritisation Exercise Invitation

This is an invitation to take part in our mesothelioma patient and carer experience Research Prioritisation Exercise.

The purpose of this exercise is to identify unanswered questions about the mesothelioma patient and carer experience in the UK and to prioritise these areas, through consultation with patients, carers and professionals.

This exercise is being undertaken by the Mesothelioma UK Research Centre team at the University of Sheffield. You can view our website here if you would like to know more about our research.

We are inviting you to complete a survey and share this with anyone else you know who is eligible and may be interested in taking part. We are seeking the views of people living with mesothelioma and their family members or close friends (including bereaved carers) and also people working to treat, care and support these people, including clinicians, academics, lawyers, asbestos support group workers and charity representatives with professional or volunteer experience. Please feel free to share our survey link via Twitter or other social media, or re-tweet from @meso_sheffield. This exercise is focused on the experiences of patients and carers in the UK only.

The survey will involve answering some brief questions about yourself. Following this, you will be asked to watch eight short video recordings, each 1-2 minutes long, that present identified research gaps. The survey will then ask how important you consider these research gaps and about any additional topics or aspects of the patient and carer experience that you consider to be in need of further research.

Further information about this research is provided at the start of the survey. Completing the survey will take approximately 20-25 minutes.

HERE is the link to access the survey

Please complete the survey by Monday 31st May 2021. If you have any questions or concerns, please do not hesitate to contact us at mesotheliomaukresearchcentre@sheffield.ac.uk.

 Many thanks for reading this and, if you complete the survey, for contributing to research to improve the experiences of people living with a mesothelioma diagnosis.

If you would like to join the Mesothelioma UK Research Centre mailing list, and get an update about this and other projects, please sign up to the mailing list here.

All best wishes, the Mesothelioma UK Research Centre Team.