{"id":2919,"date":"2023-10-12T13:32:41","date_gmt":"2023-10-12T12:32:41","guid":{"rendered":"https:\/\/www.spah.scot.nhs.uk\/about-us\/"},"modified":"2026-01-26T14:37:43","modified_gmt":"2026-01-26T14:37:43","slug":"about-us","status":"publish","type":"page","link":"https:\/\/www.nn.nhs.scot\/spah\/about-us\/","title":{"rendered":"About Us"},"content":{"rendered":"\n<p><strong>Welcome to the Scottish Paediatric &amp; Adult Haemoglobinopathies network (SPAH) website.\u00a0\u00a0<\/strong><\/p>\n\n\n\n<p>SPAH is within the National Network Managed Service (NNMS) funded by National Services Directorate (NSD) and hosted by National Health Service (NHS) National Services Scotland.<\/p>\n\n\n\n<p>The network was formally established on 1st April, 2011.<\/p>\n\n\n\n<p>The definition of a Managed Clinical Network is:<\/p>\n\n\n\n<p><em>&#8220;linked groups of Health Professionals and organisations from primary, secondary and tertiary care, working in a co-ordinated manner, unconstrained by existing professional and Health Board boundaries, to ensure equitable provision of high quality clinically effective services throughout Scotland&#8221;<\/em><\/p>\n\n\n\n<p>The network&#8217;s aims are:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>To provide links to the Newborn Screening Programme to ensure sensitive and timely confirmation of diagnosis, and early access to clinical care package for all infants suspected of having a major haemoglobinopathy.<\/li>\n\n\n\n<li>To ensure prompt diagnosis and access to treatment for cases detected beyond the new born period.<\/li>\n\n\n\n<li>To ensure access to appropriate and prompt acute care when required for all children and adults, particularly effective acute pain management services.<\/li>\n\n\n\n<li>To ensure access to multidisciplinary health care professional team who are knowledgeable about these conditions.<\/li>\n\n\n\n<li>To facilitate provision of specialist investigations as defined in national care guidelines.<\/li>\n\n\n\n<li>To ensure access to a support network\/charitable network who will be able to offer guidance on day to day living.<\/li>\n\n\n\n<li>To ensure access to services in a location that is suitable for their needs as close to home as possible.<\/li>\n<\/ul>\n\n\n\n<p>If you have anything you would like to add to this website, please contact us on\u00a0<a href=\"mailto:nss.spah@nhs.scot\">nss.spah@nhs.scot<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p class=\"nhsuk-card__description\">Welcome to the Scottish Paediatric &amp; Adult Haemoglobinopathies network (SPAH) website.\u00a0\u00a0 SPAH is within the National Network Managed Service (NNMS) [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":0,"parent":0,"menu_order":1,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-2919","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/pages\/2919","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/users\/5"}],"replies":[{"embeddable":true,"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/comments?post=2919"}],"version-history":[{"count":6,"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/pages\/2919\/revisions"}],"predecessor-version":[{"id":3533,"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/pages\/2919\/revisions\/3533"}],"wp:attachment":[{"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/media?parent=2919"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}