{"id":10,"date":"2017-05-23T15:06:22","date_gmt":"2017-05-23T14:06:22","guid":{"rendered":"http:\/\/www.mcns.scot.nhs.uk\/spah\/?page_id=10"},"modified":"2025-01-13T16:16:37","modified_gmt":"2025-01-13T16:16:37","slug":"patients-and-families","status":"publish","type":"page","link":"https:\/\/www.nn.nhs.scot\/spah\/patients-and-families\/","title":{"rendered":"Patients and Families"},"content":{"rendered":"\n<p>SPAH has listened to patients and families who told us that providing information about charities, and the support and advice they can offer would be helpful. &nbsp;Details of support groups and charities can be found below.<\/p>\n\n\n\n<p>The Contact Scotland charity provides support, advice, and information for families through their website and free confidential helpline. They also provide guidance on applying for Disability Living Allowance&nbsp;(DLA).<strong>&nbsp;&nbsp;<\/strong>To find out more&nbsp;<a href=\"https:\/\/contact.org.uk\/scotland\">visit the Contact Scotland website<\/a>.<\/p>\n\n\n\n<p>The Hope Project Scotland is a Glasgow based charity supporting people with sickle cell disease and thalassaemia. You can find out more by\u00a0<a href=\"https:\/\/thehopeprojectscotland.org.uk\/\">visiting the Hope Project website.<\/a><\/p>\n\n\n\n<p>Public Health England (PHE) in collaboration with UK Thalassaemia Society &amp; Sickle Cell Society have written a report<strong>&nbsp;<\/strong>on the personal experiences of women and couples at risk of having a baby affected by sickle cell and thalassaemia.&nbsp; You can view the&nbsp;<a href=\"https:\/\/www.spah.scot.nhs.uk\/wp-content\/uploads\/sites\/5\/2017\/05\/Parents-stories-publication-July-2017.pdf\">Parents\u2019 Stories Report<\/a>&nbsp;on the PHE website.<\/p>\n","protected":false},"excerpt":{"rendered":"<p class=\"nhsuk-card__description\">SPAH has listened to patients and families who told us that providing information about charities, and the support and advice [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":3,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-10","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/pages\/10","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/comments?post=10"}],"version-history":[{"count":118,"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/pages\/10\/revisions"}],"predecessor-version":[{"id":3418,"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/pages\/10\/revisions\/3418"}],"wp:attachment":[{"href":"https:\/\/www.nn.nhs.scot\/spah\/wp-json\/wp\/v2\/media?parent=10"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}