{"id":2226,"date":"2020-10-01T11:07:06","date_gmt":"2020-10-01T11:07:06","guid":{"rendered":"https:\/\/www.smn.scot.nhs.uk\/?page_id=2226"},"modified":"2025-08-12T10:39:04","modified_gmt":"2025-08-12T10:39:04","slug":"patient-information-leaflets","status":"publish","type":"page","link":"https:\/\/www.nn.nhs.scot\/smn\/patients-and-families\/patient-information-leaflets\/","title":{"rendered":"Patient Information Leaflets"},"content":{"rendered":"\n

All available Information Leaflets are listed below. Information leaflets are split between ‘General Information’, ‘DMD’, ‘Myasthenia Gravis’ and ‘Myotonic Dystrophy’.<\/p>\n\n\n\n

General Information Leaflets<\/h2>\n\n\n\n
General Information Leaflets<\/th>Review date<\/th><\/th><\/tr><\/thead>
About my spinal fusion<\/a><\/td>September 2026<\/td><\/td><\/tr>
An active lifestyle: What is suitable activity for people living with a muscle disorder?<\/a><\/td>March 2027<\/td><\/td><\/tr>
Benefits of stretching<\/a><\/td>October 2026<\/td><\/td><\/tr>
Chest Physiotherapy Support<\/a><\/td>April 2025<\/td><\/td><\/tr>
Continence Care – Bladder Issues<\/a><\/td>June 2027<\/td><\/td><\/tr>
Continence Care – Bowel Issues<\/a><\/td>October 2026<\/td><\/td><\/tr>
Importance of Sleep<\/a><\/td>July 2027<\/td><\/td><\/tr>
Jaw Tightness (Trismus)<\/a><\/td>October 2026<\/td><\/td><\/tr>
Fatigue Management<\/a><\/td>September 2026<\/td><\/td><\/tr>
Managing Falls<\/a><\/td>April 2025<\/td>Voice recording of a presentation on managing falls: https:\/\/www.pod-nmd.org\/managing-nmd\/falls-management\/#1701433438892-b6d2aea6-b586<\/a><\/td><\/tr>
Metabolic Myopathy<\/a><\/td>July 2026<\/td><\/td><\/tr>
Managing Oedema and circulatory problems in neuromuscular disorders<\/a><\/td>July 2027<\/td><\/td><\/tr>
Pain Management<\/a><\/td>April 2025<\/td><\/td><\/tr>
Patient Hospital Admission information<\/a><\/td>April 2025<\/td><\/td><\/tr>
Postural Management<\/a><\/td>July 2027<\/td><\/td><\/tr>
Psychological Services Information<\/a><\/td>June 2025<\/td>Please provide feedback on this leaflet by clicking here<\/a><\/td><\/tr>
Respiratory Care in Neuromuscular conditions<\/a><\/td>January 2027<\/td><\/td><\/tr>
Role of the Neuromuscular Care Advisor<\/a><\/td>April 2024<\/td>Currently under review<\/td><\/tr>
Wellness journey starts with relaxation<\/a><\/td>February 2027<\/td><\/td><\/tr><\/tbody><\/table><\/figure>\n\n\n\n

The Physical Disability Rehabilitation Unit (PDRU) based in the Queen Elizabeth University Hospital, Glasgow campus have some useful resources for general rehabilitation in adults.  There is a seated exercise class, but should you be unsure as to whether the exercises are helpful for you, please consult with your local Physio or Doctor before starting.<\/p>\n\n\n\n

https:\/\/www.nhsggc.org.uk\/your-health\/health-services\/pdru\/<\/a><\/p>\n\n\n\n

Duchenne Muscular Dystrophy (DMD)<\/h2>\n\n\n\n

Please click on relevant text below to view individual information leaflets.<\/p>\n\n\n\n

Duchenne Muscular Dystrophy (DMD) Information Leaflets<\/th>Review date<\/th><\/th><\/tr><\/thead>
Ankle Management<\/a><\/td>March 2025<\/td><\/td><\/tr>
Bladder function and Continence Care<\/a><\/td>July 2027<\/td><\/td><\/tr>
Managing Falls in young boys<\/a><\/td>August 2024<\/td><\/td><\/tr>
Vertebral fractures in children<\/a><\/td>March 2025<\/td><\/td><\/tr>
Postural Management and Stretches – Adults<\/a><\/td><\/td><\/td><\/tr><\/tbody><\/table><\/figure>\n\n\n\n

Duchenne UK information<\/h3>\n\n\n\n