{"id":35,"date":"2019-08-23T09:04:14","date_gmt":"2019-08-23T08:04:14","guid":{"rendered":"http:\/\/www.pelican.scot.nhs.uk\/?page_id=35"},"modified":"2026-10-02T18:05:58","modified_gmt":"2026-10-02T17:05:58","slug":"guidance-documents","status":"publish","type":"page","link":"https:\/\/www.nn.nhs.scot\/pelican\/professionals\/guidance-documents\/","title":{"rendered":"Guidance Documents"},"content":{"rendered":"\n<h3 class=\"wp-block-heading\">End of Life Guidance Documents<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">The following documents have been produced by the PELiCaN network and approved by the network Steering group.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\">Syringe Pump Guidance<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2025\/08\/NSD610-002.16-Syringe-Pump-Guidelines-V1.docx\">PELiCaN &#8211; Guidance Document &#8211; Guideline for the use of Syringe Pumps in Children and Young People (NSD610-002.16)<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">This guidance document is for the use of syringe pumps in children and young people only. It has been produced with kind permission of the authors of the newly published <a href=\"https:\/\/rightdecisions.scot.nhs.uk\/scottish-palliative-care-guidelines\/syringe-pump-driver-guidelines\">Adult Syringe Pump Guideline<\/a>.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\">Police Occurrence Marker \/ Ambulance Alert<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Guidance on notifying Police and Scottish Ambulance Service of Child Likely to Die in the Community:<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Please note: THE BUTTON TO SUBMIT REQUESTS AUTOMATICALLY IS NOT WORKING. FOR NOW, PLEASE SAVE THE FORM TO YOUR OWN FILES ONCE COMPLETED, THEN ATTACH AS AN EMAIL TO THE RELEVANT EMAIL ADDRESSES.<\/strong><strong> THIS WILL BE RECTIFIED SOON.<\/strong><\/p>\n\n\n\n<figure class=\"wp-block-table\"><table><tbody><tr><td><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2025\/11\/NSD610-002.08-PELiCaN-Occurrence-Markers-V5.pdf\" data-type=\"link\" data-id=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2025\/11\/NSD610-002.08-PELiCaN-Occurrence-Markers-V5.pdf\">PELiCaN \u2013 Guidance Document &#8211; Police Occurrence Marker\/ Ambulance Alert (NSD610-002.08)<\/a><\/td><\/tr><tr><td><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2025\/11\/NSD610-002.09-PELiCaN-Request-for-a-NEW-Police-Marker-Ambulance-Alert-V2.pdf\" data-type=\"link\" data-id=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2025\/11\/NSD610-002.09-PELiCaN-Request-for-a-NEW-Police-Marker-Ambulance-Alert-V2.pdf\">PELiCaN \u2013 Form &#8211; Request for a NEW Police Marker\/Ambulance Alert (NSD610-002.09)<\/a><\/td><\/tr><tr><td><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2025\/11\/NSD610-002.10-PELiCaN-Request-for-an-EXISTING-Police-Marker-Ambulance-Alert-to-be-UPDATED-V2.pdf\" data-type=\"link\" data-id=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2025\/11\/NSD610-002.10-PELiCaN-Request-for-an-EXISTING-Police-Marker-Ambulance-Alert-to-be-UPDATED-V2.pdf\">PELiCaN \u2013 Form &#8211; Request to UPDATE an EXISTING Police Marker\/Ambulance Alert (NSD610-002.10)<\/a><\/td><\/tr><tr><td><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2025\/11\/NSD610-002.11-PELiCaN-Request-for-REMOVAL-of-Police-Marker-Ambulance-Alert-V2.pdf\" data-type=\"link\" data-id=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2025\/11\/NSD610-002.11-PELiCaN-Request-for-REMOVAL-of-Police-Marker-Ambulance-Alert-V2.pdf\">PELiCaN \u2013 Form &#8211; Request for REMOVAL of Police Marker\/Ambulance Alert (NSD610-002.11)<\/a><\/td><\/tr><tr><td><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2023\/09\/Template-Occurence-Marker-Tracker-Database.xlsx\">PELiCaN- Template \u2013 Occurrence Marker Tracker Database<\/a><\/td><\/tr><tr><td><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2025\/08\/NSD610-002.19-PELiCaN-Occurrence-Marker-Family-Info-Leaflet-V1.pdf\">PELiCaN &#8211; Occurrence Marker Process: Family Information Leaflet<\/a><\/td><\/tr><tr><td><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2025\/11\/NSD610-002.20-PELiCaN-Occurrence-Marker-Family-Letter-V1.pdf\">PELiCaN &#8211; Family letter for carrying alongside the child\u2019s CYPADM form and Future Care Plan<\/a><\/td><\/tr><tr><td><a href=\"https:\/\/www.youtube.com\/watch?v=7OOBZxJm-PA\">Video &#8211; Process launch event recording (Youtube)<\/a><\/td><\/tr><tr><td><a href=\"https:\/\/youtu.be\/JTR0lK40NsA\">Video &#8211; Occurrence Marker Process What we Have Learned &#8211; Education Session<\/a><\/td><\/tr><\/tbody><\/table><\/figure>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\">Guidance for the use of Just in Case boxes for children receiving end of life care<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2024\/05\/NSD610-002.14-PELiCaN-JIC-Box-Family-Information.pdf\">Paediatric Just in Case Box Information for parents and carers<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2024\/05\/NSD610-002.13-PELiCaN-JIC-Box-Guidance-Doc.docx\">Guideline for the use of Just in Case boxes for children receiving end of life care<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.youtube.com\/watch?v=E2d-oSAa8ak&amp;embeds_referring_euri=https%3A%2F%2Fwww.nn.nhs.scot%2F&amp;source_ve_path=OTY3MTQ&amp;feature=emb_imp_woyt\" target=\"_blank\" rel=\"noreferrer noopener\">Video &#8211; Process launch event recording (YouTube)<\/a><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\">Reorientation of Care<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Guidance to support the decision making, transfer and end-of-life care of a child out with the critical care unit or ward area:<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2024\/07\/NSD610-002.01-PELiCaN-Guidance-to-support-the-care-of-a-child-outwith-the-critical-care-unit-or-ward-area.docx\">PELiCaN &#8211; Guidance document &#8211; Reorientation of Care out with the Ward or Critical Care Unit (NSD610-002.01)<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2024\/07\/NSD610-002.12-PELiCaN-Checklist-Reorientation-of-care-out-with-the-Ward-or-Critical-Care-Unit-.docx\">PELiCaN &#8211; Checklist only &#8211; Reorientation of care out with the Ward or Critical Care Unit (NSD610-002.12<\/a>)<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">The following guidance documents were designed by PELiCaN members to support the decision making, transfer and end-of-life care of a child outwith the critical care unit or ward area. Whilst currently valid and remain available to support decision-making, transfer planning, and end-of-life care for children outside of critical care and ward settings, users should be aware that a substantial revision of this guidance is in development to reflect considerable changes in service delivery, models of care, and clinical practice that have occurred since the original publication. <\/p>\n\n\n\n<p class=\"wp-block-paragraph\">While the principles within the current guidance remain applicable, an updated version will be published following completion of the review process. Until that time, these best practice documents should continue to be used in conjunction with local policies and professional judgement.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\">Professional Information and Contacts<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Information sheet for Professionals when consideration and coordination of end of life care at hospital, hospice or home is required.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">PELiCaN \u2013 Guidance Document- Professional Information and Contacts Resource (NSD610-002.02). <strong>This document is under review and has been removed temporarily from the website.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2023\/09\/CYPADM_form.pdf\">Form &#8211; Children and Young People\u2019s Acute Deterioration Management (CYPADM)<\/a><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\">Bereavement Guidance Documents<\/h3>\n\n\n\n<h3 class=\"wp-block-heading\">Spiritual Guidance Documents<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Guidance to ensure the spiritual needs of the children, young people and their families are met:<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2026\/09\/NSD610-002.03-Spiritual-Care-V3.pdf\">PELiCaN \u2013 Guidance Document- Spiritual Care<\/a><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\">Post Child Death PELiCaN Guidance Document<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Guidance and checklist to ensure every child and their family receive the same gold standard care post death of a child:<\/p>\n\n\n\n<figure class=\"wp-block-table\"><table><tbody><tr><td><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2023\/09\/Post-Child-Death-Checklist-Guidance.docx\">PELiCaN \u2013 Guidance document- Post Child Death Checklist (NSD610-002.04)<\/a><\/td><\/tr><tr><td><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2023\/09\/Clinical-Lead-Checklist-\u2013-Post-Child-Death.docx\">PELiCaN \u2013 Checklist only- Clinical Lead Checklist Post Child Death (NSD610-002.07)<\/a><\/td><\/tr><\/tbody><\/table><\/figure>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\">Family transporting child home following death<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Guidance document &#8211; family transporting child home following death.                                                                                                                             <\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2025\/10\/NSD610-002.17-PELiCaN-Taking-a-Child-Home-Guidance-V1.pdf\" data-type=\"link\" data-id=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2025\/10\/NSD610-002.17-PELiCaN-Taking-a-Child-Home-Guidance-V1.pdf\">This guidance is for use by professionals within paediatrics where a family wish to take their child home following their death.<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\" id=\"block-fed74040-9ecb-4546-bb5b-7650fc9f44e3\">Guidance which outlines the process for taking your child home following their death.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2025\/08\/NSD610-002.18-PELiCaN-Taking-A-Child-Home-PIL-V1.pdf\">PELiCaN- Information Sheet \u2013 Family transporting child home following death (NSD610-002.18)<\/a><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\">Funeral Costs in Scotland for children <\/h3>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2026\/04\/NSD610-002.15-PELiCaN-Funeral-Costs-Review-V2.pdf\">PELiCaN \u2013 Guidance Document- Useful information when planning a funeral following the death of a baby, child or young person (NSD610-002.15).<\/a><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 class=\"wp-block-heading\">Gold Standard Bereavement Debrief Guidance<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">Guidance which outlines the process for holding effective staff debriefs following the death of a baby, child or young person:<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.nn.nhs.scot\/pelican\/wp-content\/uploads\/sites\/6\/2023\/09\/Guide-to-Completing-Effective-Debriefs-following-the-death-of-a-child-or-young-person.docx\">PELiCaN \u2013 Guidance Document- Holding debriefs following the death of a baby, child or young person (NSD610-002.05)<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n","protected":false},"excerpt":{"rendered":"<p class=\"nhsuk-card__description\">End of Life Guidance Documents The following documents have been produced by the PELiCaN network and approved by the network [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":18,"menu_order":3,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-35","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.nn.nhs.scot\/pelican\/wp-json\/wp\/v2\/pages\/35","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.nn.nhs.scot\/pelican\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.nn.nhs.scot\/pelican\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.nn.nhs.scot\/pelican\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.nn.nhs.scot\/pelican\/wp-json\/wp\/v2\/comments?post=35"}],"version-history":[{"count":50,"href":"https:\/\/www.nn.nhs.scot\/pelican\/wp-json\/wp\/v2\/pages\/35\/revisions"}],"predecessor-version":[{"id":1574,"href":"https:\/\/www.nn.nhs.scot\/pelican\/wp-json\/wp\/v2\/pages\/35\/revisions\/1574"}],"up":[{"embeddable":true,"href":"https:\/\/www.nn.nhs.scot\/pelican\/wp-json\/wp\/v2\/pages\/18"}],"wp:attachment":[{"href":"https:\/\/www.nn.nhs.scot\/pelican\/wp-json\/wp\/v2\/media?parent=35"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}