{"id":2501,"date":"2020-09-21T13:53:21","date_gmt":"2020-09-21T13:53:21","guid":{"rendered":"https:\/\/www.niccs.scot.nhs.uk\/?page_id=2501"},"modified":"2025-09-24T10:17:37","modified_gmt":"2025-09-24T10:17:37","slug":"useful-links","status":"publish","type":"page","link":"https:\/\/www.nn.nhs.scot\/niccs\/patients\/useful-links\/","title":{"rendered":"Useful Links"},"content":{"rendered":"\n

Arrhythmia Alliance<\/h2>\n\n\n\n
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Arrhythmia Alliance – working together to improve the diagnosis, treatment and quality of life for all those affected by arrhythmias.<\/p>\n\n\n\n

A-A is a coalition of charities, patient groups, patients, carers, medical groups and allied professionals. Although these groups remain independent, they work together under the A-A umbrella to promote timely and effective diagnosis and treatment of arrhythmias.<\/p>\n\n\n\n

For further details please visit directly: www.arrhythmiaalliance.org.uk<\/a><\/strong><\/p>\n<\/div>\n<\/div>\n\n\n\n

British Heart Foundation<\/h2>\n\n\n\n
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BHF vision is a world free from the fear of heart and circulatory diseases. They raise money to research cures and treatments, so they can beat heartbreak forever. Conditions like heart diseases, stroke, vascular dementia are all linked by your blood not flowing properly. That’s why our research starts with your heart, but doesn’t stop there. Our research is unlocking the connections<\/a> between heart and circulatory diseases and their risk factors.<\/p>\n\n\n\n

We campaign on a number of issues related to our research. See the impact we are having nationally and in different regions across the UK.<\/p>\n\n\n\n

For more information please visit BHF website directly: www.bhf.org.uk<\/a><\/strong><\/p>\n<\/div>\n<\/div>\n\n\n\n

Cardiomyopathy UK<\/h2>\n\n\n\n
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Our vision is that everyone affected by cardiomyopathy should lead long and fulfilling lives.<\/p>\n\n\n\n

We are the specialist national charity for people affected by cardiomyopathy. We provide support and information services, work to raise awareness of the condition, campaign for better access to quality treatment and promote research.<\/p>\n\n\n\n

Cardiomyopathy UK offer a range of peer support services, for more information click here: https:\/\/www.cardiomyopathy.org\/support<\/a><\/p>\n\n\n\n

For further information please visit directly: www.cardiomyopathy.org<\/a><\/strong><\/p>\n<\/div>\n<\/div>\n\n\n\n

Genetic Alliance<\/h2>\n\n\n\n
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We work on a variety of issues that families and individuals with genetic conditions face. We aim to provide information, support families and influence the services needed by these patients. We also work to add patient voice into debates that matter to our community. Our work falls into different categories:  reproductive techniques, diagnosis, medical research, healthcare and delivery, access to treatments and living and education.<\/p>\n\n\n\n

For further information please visit directly: www.geneticalliance.org.uk<\/a><\/strong><\/p>\n<\/div>\n<\/div>\n\n\n\n

Cardiac Risk in Young<\/h2>\n\n\n\n
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Vision: Preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families.<\/p>\n\n\n\n

For further information please visit dirctly: www.c-r-y.org.uk<\/a><\/strong><\/p>\n<\/div>\n<\/div>\n\n\n\n

SHARE – NHS Research Scotland<\/h2>\n\n\n\n
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\"Share\"<\/figure>\n<\/div>\n\n\n\n
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SHARE<\/strong><\/a> is an NHS Research Scotland initiative. It has been created to establish a register of people, aged 11 and over, interested in participating in health research.<\/p>\n\n\n\n

Participants agree to allow SHARE to use the coded data in their various secure NHS computer records to check whether they might be suitable for health research studies. All information is confidential; no-one can access this information without your permission.<\/p>\n\n\n\n

It only takes a minute to join the SHARE Register<\/a> and Biobank, but together we can make a real difference to Scotland’s future health.<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"

Arrhythmia Alliance Arrhythmia Alliance – working together to improve the diagnosis, treatment and quality of life for all those affected […]<\/p>\n","protected":false},"author":9,"featured_media":0,"parent":785,"menu_order":3,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-2501","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.nn.nhs.scot\/niccs\/wp-json\/wp\/v2\/pages\/2501","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.nn.nhs.scot\/niccs\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.nn.nhs.scot\/niccs\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.nn.nhs.scot\/niccs\/wp-json\/wp\/v2\/users\/9"}],"replies":[{"embeddable":true,"href":"https:\/\/www.nn.nhs.scot\/niccs\/wp-json\/wp\/v2\/comments?post=2501"}],"version-history":[{"count":31,"href":"https:\/\/www.nn.nhs.scot\/niccs\/wp-json\/wp\/v2\/pages\/2501\/revisions"}],"predecessor-version":[{"id":4074,"href":"https:\/\/www.nn.nhs.scot\/niccs\/wp-json\/wp\/v2\/pages\/2501\/revisions\/4074"}],"up":[{"embeddable":true,"href":"https:\/\/www.nn.nhs.scot\/niccs\/wp-json\/wp\/v2\/pages\/785"}],"wp:attachment":[{"href":"https:\/\/www.nn.nhs.scot\/niccs\/wp-json\/wp\/v2\/media?parent=2501"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}